Canadian iRARE Centres / Centres iRARE Canadiens
You, your child or a loved one are affected by a rare disease?
We find the best information and resources for you.
DO YOU NEED INFORMATION ON YOUR RARE DISEASE?
WE WILL FIND FOR YOU :
- Documents for you and your healthcare team
- Clinics or expert doctors
- Existing treatments or treatments in development
- The status of research and if there are any clinical trials?
- Information on genetics, heredity and genetic testing
DO YOU NEED LISTENING, HELP, SUPPORT, RESOURCES?
WE WILL FIND FOR YOU :
- Government services
- Community resources
- People with the same illness as you in Canada (matching service)
YOU DON'T HAVE A DIAGNOSIS ?
- We will try to direct you to the right place to get a diagnosis or refer you to research
RESEARCH
Know the research in progress on your rare disease. Participate in research on your disease.
