Directories of Government
and Community Resources (Pan-Canadian)
The following is a list of Canadian resources that could be relevant to the rare community. We list the services offered by the Government of Canada and those of the community organizations that serve all Canadians.
For resources in your province or territory, see the map or list below.
Health Rights
24/7 Dedicated Support
Resources for people with disabilities (children and adults)
Other
- Inclusion Canada
- Easter Seals Canada
- Chai Lifeline Canada
- Active Living Alliance
- Canadian Disability Resource Society
- Canadian Abilities Foundation
- Eviance
- The Canadian Foundation for Physically Disabled Persons
- The Self Advocate Net
- Medic Alert Foundation Canada - Alert bracelets and other services
- Neil Squire Society – Accessible technology
- Tetra Society of North America - Assisted devices
Resources for parents of sick or disabled children
- Parenting children with special needs
- Ronald McDonald House Charities Canada
- SKIP – Solutions for Kids in Pain
Help Chronic Diseases/Chronic Pain
- Government of Canada - Chronic Pain Resources
- Pain Canada
- Chronic Pain Association of Canada
- The Canadian Pain Society
- SKIP: Solutions for Kids in Pain
- Power over Pain
- The Pain Toolkit
- Pain Management Apps and Online Resources
- Guide to Chronic Pain in Students
- Learning to Live with Chronic Pain – eBook
Resources for Caregivers
- Government of Canada - Employment Insurance Caregiving Benefits
- Canadian Centre for Caregiving Excellence
- National caregiver support organizations
- CareMakers Foundation
- Carers Canada
- CaregiversCan
Edmonton, Red Deer, Grande Prairie, Fort McMurray, Camrose, Lethbridge
- Caregivers | Government of Alberta – Home care employees
Financial Assistance
Government of Canada
Employment Aid
Community Organizations
- 211 Canada - Source of information for government and community-based, non-clinical health and social services. Find a community organization near you.
Infertility, pregnancy, and prematurity
- Government of Canada - Your Guide to a Healthy Pregnancy
- Pregnancy Care Canada
- The MotHERS Program
- Pregnancy Info - The Society of Obstetricians and Gynaecologists of Canada (SOGC)
- Prenatal Genetic Screening
- Personal decision aid – For difficult decisions during pregnancy
- Fertility Matters Canada
- Assisted human reproduction (In Vitro Fertilization, insemination)
- Assisted human reproduction – Government of Canada
- Canadian Fertility & Andrology Society
- Canadian Premature Babies Foundation
Genetics
Genetic Services
Genetic counselling and support
- Canadian iRARE Centres
- Canadian association of Genetic Counsellors
- What is a Genetic Counsellor?
- Personal decision aid
Screening
- Prenatal Genetic Screening - SOGC
- Newborn Screening Guidance - Canadian Drug Agency
Discrimination and Equity
Autism/ADHD/Learning Disorders
Autism
- Government of Canada Autism Supports
- Autism Canada
- Autism Alliance of Canada
- AIDE Canada
- Autism Speaks Canada
Learning Disabilities
Attention Deficit Hyperactivity Disorder (ADHD)
Death and Grief
- Government of Canada - Loss and Grief
- Government of Canada - Death Benefit
- Canadian Grief Alliance
- Grief Watch
- ca
- The Children’s Grief Foundation of Canada
- The Canadian Alliance for Children's Grief
- ca
- Grief and Bereavement Support for Youth
- The Compassionate Friends of Canada - Loss of a child
- Unexpecting: Real Talk on Pregnancy Loss
- Baby’s Breath
Travel and Culture
- Travelling with disabilities – Government of Canada
- Take charge of your travels
- Rick Hansen Foundation
- Accessibility Standards Canada
- Wheel the World Canada – Accessible hotels
- Air Canada Accessibility Services
- WestJet Attendant Services
- Access 2 Card Program (Easter Seals) – Free pass for person accompanying a person with disabilities for cultural, entertainment (ex. movie theatres), and recreation facilities
Professional Orders in Health
- Royal College of Physicians and Surgeons of Canada
- Canadian Pharmacists Association
- Canadian Nurses Association
- Canadian Psychiatric Association
- Canadian Association of Occupational Therapists
- Canadian Physiotherapy Association
- Speech-Language & Audiology Canada
- Canadian Society of Respiratory Therapists
- Dietitians of Canada
- Canadian Association of Optometrists
- Canadian Association of Social Workers
- Canadian Chiropractic Association
- Canadian Association of Naturopathic Doctors
- Canadian Ostheopathic Association
- The Chinese Medicine and Acupuncture Association of Canada
